This weekend poor Molly had been miserable with sickness, pain and generally feeling unwell. The communication book for last week was similar, some negative behaviours unfortunately however I truly believe if you are continuously having bouts of pain with some sickness also who wouldn’t be agitated and grumpy! When without pain she bounces back to…

Since the endoscopy Molly has continued to have sickness and abdominal pain, however this has not prevented her from having ‘better days’ in fact some have been described by staff as “super positive”. Monday 16th September Molly went back to Prism Art, reported to have been sick and cried but even so this was progress!…

Molly was so brave today 09.09.24 We were blessed today, Molly showed courage and strength! Sliding doors comes to mind, we were in the procedure room when she shouted “leave me alone” she refused having the cannula put in so she couldn’t have the sedation prior to the endoscopy. I was gutted. We left the…

I am mentally preparing for the unknown, going to get Molly shortly and wondering which Molly will present. I understand she is possibly withdrawing again, understandably so with all the medication changes but my fear is the looming catatonia. There are signs – now let me see….. Tomorrow is the endoscopy, she may or may…

Tuesday night about 9.30pm I collected Molly to take her to CHOC appointment, the vomiting was non stop and very dark brown. Observations were fine they offered for us to wait to see a medical dr however there were no beds. It was now getting on for 11pm so we chose to leave. The vomiting…

So on Wednesday we had a EMDT, which resulted in the Aripiprozole stopping completely no tapering just instruction to remove from her medication regime. The GP had requested an endoscopy on Monday, this will now be requested as URGENT from the chair of the meeting. The reduction of medication is restoring Molly and we feel…

On the 5th of July an MDT took place and the reduction of Quetiapine was agreed to commence. On Saturday the 27th July I noticed Molly was spaced out, shaking all over from head to toe and walking very bizarre, pigeon toed, robotic and falling forward. She was happy to see me and smiled all…

We spent yesterday (30.06.24) in A&E again, Molly had the same concern, stomach pain and vomiting, no further forward, bloods indicate no infection or inflammation. Not acute so discharged, Molly came home in scrubs. Mood irrational, she is slowing down finding it hard to get in and out of the bath. Molly is also having…

Happy birthday Molly 28 today 💕💕💕 Now let me see…. Since I last wrote it could be said there has been improvement however my concerns about Molly remain, she seems overmedicated and still has problems with her gut, sickness and her bowel. After her recent CT scan in A&E Molly is currently still waiting for…

“Good Friday was good until it wasn’t”…… Those were the words of a father of two autistic boys, as much as he describes joy he also describes with such truth the fact he finds life challenging and at times very lonely. He doesn’t sugar coat anything and I admire that, he describes parenting of special…