I’m seeing things I don’t want to see and I am scared, scared for Molly. I am predicting she has excited catatonia, now let me see…… The most commonly seen manifestation of catatonia in autism is a gradual deterioration/breakdown in functioning. While both excited catatonia and a bipolar high can involve increased energy and agitation, the…

I have just received a call this morning from PALS, the consultant has ‘offered the gastric delay study with support from mum, or alternatively go a therapeutic trial’. At this stage he obviously isn’t aware that the study was done yesterday. PALS will inform him and also express from myself that under no uncertain terms…

The Serenity Prayer No one knows what tomorrow brings…. Yesterday I went to pick Molly up from Mountview. Driving there not knowing if she would actually come with me. I so wanted her to come but I had to accept ‘what will be will be’. Me accepting that I have to let go, accepting I…

26/02/2025 I get a call to say Molly has been vomiting to the point she had been advised to go to A&E, I left work and made my way up there. She had been given painkillers and was waiting to be seen. Blood checked and all good so again told this is not acute this…

Molly refused to attend the GP appointment on Monday night (17th February) so I went and represented Molly on her behalf. This GP said she would arrange for Molly to see her usual GP, the appointment came through via text for 12th March. She said she would also contact the Gastroenterology dept reference the referral…

12/02 GP said “Mollys bowel sounds good” 13/02 RADS Psychiatrist thinks we should decrease the quetiapine down again. I asked, in the light of Molly still suffering from stomach pain and sickness should we possibly consider that ‘Antipsychotics, especially second-generation antipsychotics can cause gastroparesis and other gastrointestinal issues because they delay gastric emptying? (Note: Quetiapine and lamotrigine…

Don’t you just hate it sometimes? Molly is here with me and it’s alright but my intuition is telling me it’s not. Do I run with it or ground myself in some way? (see it as it is, don’t make it bigger than it is). She up way later than usual, seems absent for periods…

12.01.2025 9.30pm The water was off today at Mountview so I collected Molly early, unexpectedly she came with me….. Molly was starting to find leaving home difficult and so I had no expectations of how today would turn out. Unexpectedly she came shopping with me. Unexpectedly she visited a friend with me. Unexpectedly she stayed…

28/12/2024 My last post was October so here’s an update on Molly: Since Quetiapine was down titrated Molly’s level of sedation and awareness has improved significantly. It is clear that this was having quite a sedative effect at the higher doses. On review of the Cytochrome P450 genetic studies we can see that Molly is…

œufs nucléaires Molly went to the Nuclear Medicine Department at the Infirmary in Carlisle on Monday for a Gastric Emptying Study. Basically she had to eat scrambled eggs on toast with a radioactive tracer and then a radioisotope scan would take a picture every 15 minutes for one and a half hours. I picked Molly…