It’s always hard for a special needs autistic person, routines tend to go out the window even though we try our hardest to keep them!! Molly is here at Chertsey Mount with me, she is tucked up in bed hoping for a Reborn baby and an Adidas jacket off Santa. She is very repetitive but…

16/11/2025 Let me start with an update before I tell you about my small mercies…. On the 9th October we had a meeting on teams with both Dr Anderson from RADS and Dr Strong from Carleton Clinic, both are psychiatrists. Unfortunately the previous positives for Molly presentation have not been sustained. Molly’s appetite continues to…

Yesterday we had a meeting with her psychiatrist, truth is Mollys hypomania is not responding to Orlanzapine, the increase has made some things worse, increased appetite, agitation and irritability, some slight improvements to her sleep and obsessively changing her clothes (PJ’s), this behaviour has reduced. A decision was made to increase the dosage, monitor for…

17/08/2025 I can’t lie, I could say I am fine, Molly is fine, as we all often do…even if we are trying only to convince ourselves. In truth today, for whatever reason, I couldn’t hide my sorrow, my sadness, my worry or the fact I am not sure how much more I can take. Seeing…

On the 31st July 2025, I called the crisis team with concerns about Molly. She is not sleeping, changed her PJ’s many times through the night, has oculogyric crisis, is very repetitive and has no spacial awareness plus agitation. The said they would call back, they did at 2am which I missed… called back later…

We have received the date for the X Ray this Thursday 17/07/25. This will rule out a bowel blockage or identify one…………now let me see. Vomiting is still there but not so much, bowel movements are less but still type 7 on the Bristol Stool Chart. Due you hypomania Amilsulpride was increased on 11/07/2025 just…

Where do I start… now let me see… The weight loss enabled to GP to feel a bowel blockage, Molly went on a huge increase of her medication to support this for two weeks with the hope that it would unblock her, then 2 more weeks on half the amount. Type 7 bowel movements remained…

Hey I’ve been thinking, thinking I need to stop trying to fix things, fix Molly…. At the last meeting in Newcastle I was told Molly, may be without Symptoms for many years however, it will return at somepoint. That was actually very hard to swallow, I think I thought we were going to fix her.…

Awful subject, but it’s important, after a large BM today Molly has been doubly incontinent at Prisms Arts a number of times and had to leave early because of this. Molly has reported she was in pain with a sore tummy. It’s now 5.15pm and she is settled at home having her evening meal. Now…

The meeting on Thursday with the body dr and the mind drs resulted in them consulting with each other. Different fields of medicine but they are obviously linked. The antipsychotic medication, has caused constipation, which caused the GI bleed 2 years ago. Molly was then catatonic, she was prescribed lorazepam which also causes constipation. Molly…