Beautiful present received for Molly from an old school friend of mine – thank you Catharine Naylor – just perfect!
Managed to get the bath water temperature sorted out but the new remote thermostat is a bugger to control to say the least, sat last night on youtube trying to work it out and I haven’t cracked it yet much to my disappointment.
Another good week to report, transition to staff changes will always be a problem which hopefully will improve in time. It was also half term which meant Prism Art was not on and Molly likes her routine as we know. Same old, same old if the best way forward in the autistic world, it feels safe. To be fair she visited the Grace Little centre (Mencap) last week and when I dropped her off this Morning she said she was going to finish her stencilling I was quite impressed, she engaged with staff and other service users and was very happy for me to leave, in fact it was as if she wanted me to go? When I got in the car I smiled to myself feeling like wow this feels good, different but good!
When they are ok then we are too – it’s just a given!
Didn’t get the shelves painted, the staff boards put up or Molly wardrobe built its a full-time job just caring. I take my hat off to the carers out there! I don’t know how I managed Molly at home full time and working. I suppose when you have to you have to …..you just do the best you can.
Haven’t really wound down yet but I will and I feel excited at the thought!
So far so good 😊
Take care all luv C x
Mission accomplished, today was a big day, Mollys section was lifted and she has been officially discharged from hospital. We had a very positive MDT meeting today and all reports exceeded our expectations!
I left Molly at the house this morning after my weekend shift which literally went too quick for me, it’s all been a lot to take in and the build up to this day is hitting home, it’s all too good to be true! Molly has been a star, it’s a huge milestone and hopefully her last upheaval- transition. She can now move forward in hopefully her forever home, I couldn’t ask for anything more.
Mollys CPN will visit tomorrow (within 24 hours of discharge) and she will be monitored by the professionals at a couple more MDT meetings and then her usual reviews. The ward manager said that the staff were all very fond of Molly and that they miss her and wish her every happiness, so lovely to hear!
I will miss Edenwood, don’t know how many times I have walked the Carleton Mile or picked up the litter around the estate (pretending it was her little job) I think the Road on the way up to the clinic had the best Xmas lights in Carlisle last December! I will however still be up there in my new role of Expert by Experience as a panel member on Care and Treatment Reviews.
This is not the end only a new way forward and it is still early days. Will be in touch soon just wanted to share the good news I received today!
Luv C x
Well it’s Saturday night I took over from Mencap this morning, to see Molly for the first time since last Sunday was exciting to say the least! She was fine, it’s all quite unbelievable she is accepting that this is her home. She is one lucky girl and what my friends have done for us both is actually priceless!
I am sitting here in this beautiful house while Molly sleeps thinking dreams really can come true!
A great team are in place to support Molly going forward and I have such gratitude to all the staff in Edenwood who have been Molly’s and my family for the past thirteen months, they have played a huge part in her recovery and I will always be grateful for their support and care for Molly. I am adjusting to going straight home after work instead of going to the hospital and it’s pretty weird.
Week 1 – I am actually lost for words!
I am hopeful, happy and very very proud.
Luv C x
Do you watch this programme? I am addicted to it, these recruits are unbelievable physically and mentally!
I am not physically fit but I am mentally, I know this is so because of all the challenges I have faced fighting for and caring for my daughter Molly. Life is very different for carers, not better not worse just very different. I have said this before “you almost have to surrender your own life” it just becomes your way of life which has been forever normal to you.
Discharge is imminent – this Monday coming – I don’t know how it will go but whatever happens we will deal with it at the time, I only live in the moment that I am in now, there is no room to think ahead although saying that I am very organised and prepared I have tried to imagine what the house needs from the point of view of the girls and the staff.
Yesterday a friend of my sons fitted a new sink, two radiators and sorted the settings for the water even cleaned a fire and got it working for us. No charge for his time – he said he wanted to support this cause. How amazing is that, such a gentleman and so generous!! Craig thank you from the bottom of my heart! 💜 (you are an Angel) – Dark Rum it is then!
Three days to go…………………
Just want to say big a thank you to Stephen Prince (Molly’s dad) for all his hard work and to my son Rob who completed the electrical work today supported by Mark his work colleague. In between all this Robs baby son River Lucas Prince 💙 was born on 26th of last month, little brother for Hallie 💖 and cousin to Caleb 💙 well done Lauren and Rob!
It’s all happening in Mollywood!
Watch this space there is more to come!! praying for a smooth transition 🙏🏻.
Luv C x
Just a quick update from me, last minute crisis forgot to get the washing machine plumbed. I took a hire van back this morning (was collecting more things for the house yesterday) only killed a pheasant on the way and had feathers everywhere and a broken grill! That aside met with Mencap to go over Mollys care plan – all ship shape so this is it ….and we’re off!!!
Cleaned out cupboards all afternoon keeping busy busy – don’t want to think about it all but of course I just can’t switch off! Update revealed she wont take her coat off, she is resisting oh dear…..only to be expected I suppose, so hard for special needs people but lots of TLC and Hot chocolate will help I am sure.
I feel like I want to run to her but I can’t. We have to get passed this, I will see her at the weekend.
Will keep you posted.
Luv C x