I have a lot to get off my chest this evening. The choking feeling has subsided and so now I can begin….Imagine fighting so hard for years,yes years, you are tired and realise there is yet another mountain to climb and you have to get ready again because under no circumstances can you give up!
Can your dream of your daughter living in her own home being well supported ever become a reality? I have no doubt that it can but the burning hoops you have to jump through are demoralising and outrageous, exhausting and they choke you.
There is no easy road to take and I often don’t feel equipped with enough adequate knowledge to get there. I know what I have to do – ask for help, get in touch with the right people and learn very quickly as time is of the essence now. There doesn’t appear to be a handbook on this subject more to the pity.
Molly needs to move on from her admission to hospital and soon, this is becoming so obvious. Lots of meetings need to be arranged but in what order? God only knows…..and please stop cancelling them if you are reading this!!!!
I have met with the Social Housing Landlord and the potential property was informally accepted as suitable. Now we have to exhaust vacancies known to Adult Social Care but as yet they have not identified any to me which is very frustrating.
Transition as I have repeatedly said affects Mollys mental health, so if this isn’t handled with that in mind and she does become ill again someone will have a lot to answer to and I will expose this journey, the negligence and how ultimately admissions into hospital are more costly to the tax payers and draining the NHS. ASC are failing to move people on who the become bed blockers – a word I had never heard of before this experience.
Back in September I told many professionals that their plan for Mollys weekly diary was too complicated and would make her ill, the Mania arrived followed by the section in January – I rest my case.
Now that I have resumed a normal breathing pattern, can see more clearly and have adjusted my attitude I will fight on….
We will move forward with or without others approval to purchase the house. Two other lovely girls will get a home too and with their strong and passionate families fighting their corner we will succeed and this dream will become a reality.
In the mean time inhale and exhale. This may seem a bit dramatic and tomorrow is another day and all that but today right now this is how I feel!
Better off my chest I can breathe again.
Luv C x